General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsHi DU friends
In December, I had a mild heart attack which forced me to get a complete medical check up. Due to the check up, it was discovered that I have both prostate cancer and bladder cancer. The prostate cancer treatment is coming along well, however the bladder cancer treatment is not responding. They have tried both chemo and radiation. So now they will be infusing me into the bladder with a mild form tuberculosis. I am a bit nervous about it.
If anyone has had this treatment, can you let me know what to expect? And for all of my friends here on DU I ask for your prayers and healing wishes. If I don't respond quickly, please extend grace to me. I might not be feeling well enough to get back to you in a timely manner
Thanks Mike C
UpInArms
(55,119 posts)I am so sorry that you are going through all of this. I have no experience, so cannot offer any advice.
I will say that you are loved and my virtual arms are around you (((((hugs)))))
uia
gopiscrap
(24,765 posts)senseandsensibility
(25,223 posts)but I am sending you good thoughts. Stay strong, my friend.
LoisB
(13,165 posts)are restored to good health.
PeaceWave
(3,649 posts)The tuberculosis vaccine strain you're going to get is a form of immunotherapy. It's intended to stimulate an immune response to kill the cancer cells and prevent recurrence. Hopefully, it works as intended. Immunotherapy really is the gold standard today. It sounds like you're in good hands. Best of luck.
Lifeafter70
(1,136 posts)I found the same as you. I was glad to see that it is used in early stage.
I do a lot of research for new treatments for different cancer due to my son's diagnosis of ACC cancer.
What I found for Mike C treatment was very positive.
Diamond_Dog
(40,792 posts)Please know everyone here at DU is rooting for your speedy and full recovery.
malaise
(296,978 posts)Be gentle with yourself
gopiscrap
(24,765 posts)I have always loved your posts! Mike
yardwork
(69,475 posts)LuckyCharms
(22,688 posts)Hang tough. You're going to be alright.
ananda
(35,309 posts)Or carry gene therapy somehow.
Maru Kitteh
(31,886 posts)is the function it serves. Ill have to look it up tomorrow.
mwmisses4289
(4,463 posts)Y'all take care of yourselves, ya hear?
🫂 another hug for good measure.
gopiscrap
(24,765 posts)2naSalit
(103,407 posts)Healing vibes to you!
Grim Chieftain
(1,889 posts)You're in my thoughts, gopiscrap.
Take care.
1WorldHope
(2,099 posts)I'm betting it stopped you in your tracks.
All this seems like a good excuse to stop and smell the roses. Treat yourself well, squash negative thoughts when you hear yourself thinking them. Watch a lot of comedy and listen to music often. Life hands us these situations. How we react to them, I believe, is the most important part. Your friends here are pulling for you and are here if you need to talk or laugh or cry. Do it all at once if you like. You are precious! They really are doing some good stuff with cancer still. 💜🤟🏼🙏🏼
gopiscrap
(24,765 posts)1WorldHope
(2,099 posts)Faux pas
(16,447 posts)the best vibes for healing
JMCKUSICK
(6,378 posts)Please know you have all of us behind you each step of the way. Our prayers, Vibes and thoughts will cushion your journey and most importantly, always be in your company whenever you need us!
God Speed!
gopiscrap
(24,765 posts)MustLoveBeagles
(16,887 posts)And a hug
irisblue
(37,663 posts)murielm99
(33,023 posts)Cancer does suck.
OddMom20
(70 posts)I wish I could send you advice to help you in this fight, but Ive got nothing to offer there. Know that youre being thought of and held close by many du-ers, and we will be here whenever you need us.
Cha
(319,694 posts)Mike C. 💙💔☮️🌻🕯️🕊️💜
cachukis
(4,029 posts)Lifeafter70
(1,136 posts)I hope the new treatment goes well with few side affects.
SheltieLover
(81,288 posts)Is this an experimental tx?
What is the prognosis?
Questions I would ask.
Take good care!
calimary
(90,382 posts)When its possible, and easier for you, please do keep us posted. Were gonna want to know how youre doing. Id guess everybody who reads this update is pulling for you and sending lots of good thoughts and healing vibes.
I always like to think green. Trees and gardens always feed the eyes AND the soul. However much you can surround yourself with beautiful green leafy and flowery growth, itll feed your spirit. It can be really invigorating! Give yourself the gift of beauty, renewal, and abundance every time you look around, outside. Enjoy every new sprout or planting or budding that you might see, anytime you take even a short walk outside. Its Spring! This is the time of year when EVERYTHING is blooming and the bees are all busy working overtime out there. Sometimes it just seems like theres magic everywhere! And, come on, dont you deserve it?
Natural beauty can be a serious tonic for your mind.
livetohike
(24,341 posts)care team Mike C. Sending hugs as you navigate and win this challenge
.
niyad
(133,200 posts)healing. Your DU family is here for you. Lean as hard as you need. As SKITTLES says, someone is always here.
TBF
(36,898 posts)I am so sorry to hear you are going through this!
Passages
(4,306 posts)for a rapid recovery, and may your journey be swift. I hope you have a good support system at home, too!
redwitch
(15,268 posts)I hope the doctors plan B takes care of the bladder cancer fast!
barbtries
(31,323 posts)but you do have my very best wishes for an effective treatment and great outcome!
ms liberty
(11,295 posts)Permanut
(8,470 posts)All the best to you.
radical noodle
(10,658 posts)but I know three people who had bladder cancer and had some sort of infusion. In all three cases, it worked well. Two are still living many years later, and one died of other causes just recently. I hope this helps ease your mind a bit.
Healing hugs to you.
KT2000
(22,180 posts)going through some stuff - they know what they are doing!!
Just fasten your seatbelt and think forward.
Best to you!
Joinfortmill
(21,388 posts)Solly Mack
(97,086 posts)Marie Marie
(11,398 posts)City Lights
(25,937 posts)TexLaProgressive
(12,758 posts)First I had prostate cancer and it was removed 15 years ago. Then 2-3 years ago. I started passing blood in urine. I was diagnosed with bladder cancer and a TURBT determined it was muscle invasive. I underwent 3 rounds of dense dose MVAC chemo which shrunk the tumors to undetectable by a CT scan. Know it would recur we settled on a radical cyctectomy with ileal conduit. This means I have a urostomy..
That they are thinking of using BCG infusions you cancer is probably stage 1. Iirc the infusions will probably be self administered. Something else when urinating in the toilet it is highly recommended to sterilze it with chlorine bleech. The BCG can be dangerous to others.
Good luck to you on your treatment.
Silver Gaia
(5,379 posts)for bladder cancer and it was a success! As I recall, it wasn't any worse than regular chemo, but we did have to be careful that he not infect anyone in the family. He is many years out now, and just had a scan to check last week. Still cancer-free!
Good luck!
gademocrat7
(11,986 posts)canetoad
(20,854 posts)Reading upthread, this could be successful. I hope it is.
NNadir
(38,300 posts)I personally know next to nothing about the topic and I am in no way a medical professional, but in this small way, perhaps I can be of service. The paper to which I refer is in the journal ACS Pharmacology Translational Science 2025 8, 2, 286-307 and is a review article entitled "A Comprehensive Review of Current Approaches in Bladder Cancer Treatment."
It may or may not be useful to you but I can share it.
I have not opened it and read it myself as of yet, but whenever a family member faces a health crisis this is how I approach it, checking out related scientific papers on the topic. I'm not a doctor but the process helps to demystify what we're being told.
Good luck.
gopiscrap
(24,765 posts)WinstonSmith4740
(3,449 posts)Even if we're not doing it here, medical science is progressing, and new discoveries are happening. I recently read an article about using bacteria to fight cancer cells, which sounds like it's in the same ballpark as using the mild form of TB.
You've got this. Just remember that it doesn't matter what the "cure" rate is of any given protocol, even if it's small. If you're in that small percentage, YOUR cure rate is 100%. Keep us in the loop...we've got you.
https://pmc.ncbi.nlm.nih.gov/articles/PMC11790194/
carpetbagger
(5,494 posts)Palliative care doctor here. It's actually a neat treatment, your body can't tell the BCG apart from the cancer, so it attacks the cancer as well.On average, it's a lot less bothersome than radiation, most of the effects can be described as general vaccination response (i.e. the flu-like symptoms after a covid or shingles shot) and "we messed with your bladder so it'll be angry for a little while" symptoms. They'll givr youna bunch of instructions that make it sound like you're a walking biohazard, it's pretty much theoretical-precautionary, I've never heard of anyone getting cross-infected from a treated patient.
Yonnie3
(19,531 posts)If you search BCG treatment you will find information like this https://my.clevelandclinic.org/health/treatments/17908-bacillus-calmette-guerin-bcg-treatment
Typically I would have a cystoscopy and if a tumor was spotted. I would then have a surgery via the urinary track and the cancer was removed. The pathologists would determine the stage and grade. What they find will likely determine the best treatment.
After a healing period I would then go to the urologist and BCG was inserted into my bladder via a catheter. I was asked to hold the BCG in my bladder for several hours. It was difficult to do sometimes. I was supposed to relieve myself only in a toilet and to add bleach to kill the BCG. Infusions were done weekly for six weeks.
After three months they took a another look inside my bladder. They saw more cancer and we started over with a surgery. The pathologists said it was a lower grade (aggressiveness) this time. After healing, I had and additional six weeks of the infusions and then had a cystoscopy (a look inside) in three months which was clean.
I then did a maintenance BGC regime where I had single infusions spaced at increasing intervals.
This has been going on since 1995 and I had several surgeries and courses of treatment. I still have annual looks in my bladder, but haven't needed a surgery since 2012 (I think) and haven't had BCG for roughly ten years.
There was no radiation as treatment for my cancer. I did let them try a chemo agent in my bladder immediately after a surgery, but my understanding is that trial was not successful and it was discontinued.
Please feel free to private message me with questions or concerns. I'll try to relate my experiences directly to you.
HeartsCanHope
(1,707 posts)Will be thinking of you and your family as you go through treatment and hoping for the very best.
cate94
(3,110 posts)Clouds Passing
(8,084 posts)May your body respond well to treatments 🙏🏼
Timewas
(2,757 posts)I have had bladder cancer for about 10 years now, the TB infusion is the first one, it is basically very easy and the main side effect is some tiredness, for me it was very minor.. I have had 3 different chemo infusions, just finished the thrid one a week ago.
They have a new device that they insert and it remains using the same as the TB infusion only quite a bit less it is a slow release system that remains in the bladder .
The "pretzel" (TAR-200) is a, flexible, pretzel-shaped device designed for slow, sustained release of the chemotherapy drug gemcitabine directly into the bladder to treat high-risk, non-muscle invasive bladder cancer (NMIBC). It offers a higher, more consistent drug concentration for weeks rather than hours, showing an 82-83.5% complete response rate in trials for BCG-unresponsive patients.
live love laugh
(16,434 posts)surfered
(13,837 posts)LetMyPeopleVote
(180,763 posts)Take care of yourself and get well. It sounds like your doctors are on top of these conditions
applegrove
(132,650 posts)some_of_us_are_sane
(3,365 posts)Hey Joe
(709 posts)Hope you are victorious in your battle and gain your health and strength back soon.
Good luck!
Bayard
(29,978 posts)But hoping for good results with your treatment. Please keep us posted. Lots of people care about you here.
live love laugh
(16,434 posts)GAJMac
(271 posts)I had a good friend/coworker who had this exact treatment. In his case, it was the first treatment tried, if I remember rightly. He responded VERY well to the treatment, and has now been cancer free for about two years.
This did, however, cause him to re-think his priorities, so he's now retired (miss that guy).
The worst part for him was sanitizing the bathroom after the treatment. The Doctor cautioned him to have his family members use a different bathroom if possible (it was), and to throughly clean and sanitize the bathroom before letting in his household use it. At least he only had to do that was for only the first couple of days after each treatment.
MLAA
(19,775 posts)✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨🩷✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨
Wild blueberry
(8,336 posts)Sending lots of forest energy from northern Wisconsin.
It's a lot to take in. Let yourself take in the beauty of our world and let yourself heal.
Hugs
Deuxcents
(27,343 posts)Along with wishes from DUers from all over the country..good advice and the best news was the ones saying how far the advanced generation of medical technology has come for your health issue and its success rate for a healthy future. Keep us posted 🌺
Figarosmom
(12,568 posts)From the others on this thread, sounds like you're in good hands that know what to do. You'll be fine and now is the time to relax and do things you like to do. Oh, and Mike, go outside and collect some of those healing negative ions. I'm a firm believer in the powers of Mother Nature.
spanone
(141,865 posts)mountain grammy
(29,101 posts)Looks like youve got company here.
Love your posts. Get well soon and get back to us.
róisín_dubh
(12,371 posts)I cant give you any advice, just good wishes. My partner has prostate cancer. Hell have keyhole robotic surgery at some stage this summer.
OAITW r.2.0
(32,376 posts)Keep the good fight going. We are all rooting for you.
summer_in_TX
(4,205 posts)Comfort, peace, and strength as well.
There are some amazing new treatments.
greatauntoftriplets
(179,188 posts)Best of luck with any treatment that you decide to go with. My best wishes are with you.
IndianaDave
(660 posts)and I will continue to pray for you, Mike. May you experience permanent healing and find inner peace.
Dave
Laurelin
(942 posts)I'm not able to do much else while getting chemo. So I've got you covered with prayer and positive thoughts. I know nothing but it sounds like you have all sorts of hope. Stay strong!
KitFox
(587 posts)cancer. He had BCG treatment and it was successful, as he was cancer free for the rest of his life. He did have a couple of rare side affects from it: conjunctivitis (easily treated and lasted only a few days) and reactive arthritis which was managed well with Methotrexate. He originally had surgery to remove the small tumor, but after a year it grew back. He had surgery again to remove it and following that is when they scheduled him for the BCG treatments. That did the trick and I sincerely hope this will be successful for you, too. Get as much restorative rest as you can and know we are all pulling for you!