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gopiscrap

(24,765 posts)
Wed Apr 22, 2026, 02:12 PM 14 hrs ago

Hi DU friends

In December, I had a mild heart attack which forced me to get a complete medical check up. Due to the check up, it was discovered that I have both prostate cancer and bladder cancer. The prostate cancer treatment is coming along well, however the bladder cancer treatment is not responding. They have tried both chemo and radiation. So now they will be infusing me into the bladder with a mild form tuberculosis. I am a bit nervous about it.

If anyone has had this treatment, can you let me know what to expect? And for all of my friends here on DU I ask for your prayers and healing wishes. If I don't respond quickly, please extend grace to me. I might not be feeling well enough to get back to you in a timely manner

Thanks Mike C

82 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Hi DU friends (Original Post) gopiscrap 14 hrs ago OP
Take care of yourself, Mike UpInArms 14 hrs ago #1
thank you, you are very kind gopiscrap 14 hrs ago #2
I'm sorry that I don't have anything more practical to offer senseandsensibility 14 hrs ago #3
Sending healing prayers your way. I truly hope this treatment works and you LoisB 14 hrs ago #4
It sounds like you've been diagnosed with either Stage 0 or 1 bladder cancer... PeaceWave 14 hrs ago #5
I wasn't familiar with this treatment so did a little research Lifeafter70 13 hrs ago #31
It sounds a bit daunting, but medical science today is incredible. Diamond_Dog 14 hrs ago #6
Thinking of you malaise 14 hrs ago #7
thank you, you are very kind gopiscrap 14 hrs ago #8
I hope you'll be ok! yardwork 14 hrs ago #9
Best wishes, Mike. LuckyCharms 14 hrs ago #10
I'm guessing the TB is supposed to eat the cancer. ananda 14 hrs ago #11
TB is good at encapsulating. I'm wondering if that Maru Kitteh 5 hrs ago #74
🫂 to you and your family. mwmisses4289 14 hrs ago #12
thank you gopiscrap 14 hrs ago #13
Sending... 2naSalit 14 hrs ago #14
Sending best wishes and healing vibes Grim Chieftain 13 hrs ago #15
That was a whole lot all at once. 1WorldHope 13 hrs ago #16
OMG thank you, you are so kind gopiscrap 13 hrs ago #17
💜🤍💜🤍💜🤍💜🤍💜 1WorldHope 13 hrs ago #19
Sending you Faux pas 13 hrs ago #18
I'm really sorry to hear that Mike. JMCKUSICK 13 hrs ago #20
thank you so much gopiscrap 13 hrs ago #21
Sending healing vibes 🤗 MustLoveBeagles 13 hrs ago #22
#CancerSucks. I cannot speak to your issue with info, but Mike irisblue 13 hrs ago #23
Yes. murielm99 12 hrs ago #39
Sending you vibes for a good fight, Mike OddMom20 13 hrs ago #24
My Healing energy thoughts to you Cha 13 hrs ago #25
Peace. cachukis 13 hrs ago #26
Healing vibes going your way Lifeafter70 13 hrs ago #27
Healing vibes on the way to you SheltieLover 13 hrs ago #28
Thank you for the update, Mike. calimary 13 hrs ago #29
Holding positive thoughts for you and your livetohike 13 hrs ago #30
My dear friend, sending vibes for your complete recovery and niyad 13 hrs ago #32
Love and light from Texas - TBF 12 hrs ago #33
Dear Mike C, I'm not familiar with those treatments. I am here to wish you all the best Passages 12 hrs ago #34
Healing prayers from upstate New York redwitch 12 hrs ago #35
I don't have any experience with this to offer you, barbtries 12 hrs ago #36
Sending you love and vibes ms liberty 12 hrs ago #37
You're carrying a heavy load, my friend.. Permanut 12 hrs ago #38
Not sure it was the same type of infusion radical noodle 12 hrs ago #40
One thing I learned KT2000 12 hrs ago #41
I prayed for you my DU compatriot. Joinfortmill 12 hrs ago #42
Wishing you the best. Solly Mack 12 hrs ago #43
Wishing you a good outcome in all of your treatments. Marie Marie 12 hrs ago #44
Sorry to hear this, Mike. Sending healing vibes your way. City Lights 12 hrs ago #45
It was different in my cases. TexLaProgressive 12 hrs ago #46
I am happy to report that my husband had this treatment Silver Gaia 11 hrs ago #47
Sending healing hugs. gademocrat7 11 hrs ago #48
Very best wishes Mike canetoad 11 hrs ago #49
I'm sorry to hear this. If you PM me, I can send you a recent scientific review article on the topic. NNadir 11 hrs ago #50
thank you I will DM you gopiscrap 11 hrs ago #55
Hang in there, Mike. WinstonSmith4740 11 hrs ago #51
From my secondhand experience.... carpetbagger 11 hrs ago #52
I have had these TB infusions dozens of times over 20 years Yonnie3 11 hrs ago #53
Don't know anything about the treatment, gopiscrap, but sending you healing vibes. HeartsCanHope 11 hrs ago #54
Sending prayers your way cate94 11 hrs ago #56
Sending you healing energies 💚 and comfort 🧡 Mike Clouds Passing 10 hrs ago #57
The TB infusion Timewas 10 hrs ago #58
Thanks for the helpful info my loved one was just diagnosed. live love laugh 9 hrs ago #65
Can't give any advice except to recommend M D Anderson in Houston. Good luck! surfered 10 hrs ago #59
You will be in my prayers LetMyPeopleVote 10 hrs ago #60
Aw no. Vibes to you. Stick close by to the DU. applegrove 9 hrs ago #61
From our lips some_of_us_are_sane 9 hrs ago #62
Best wishes for you and yours Hey Joe 9 hrs ago #63
Sorry to hear this, Mike.... Bayard 9 hrs ago #64
Wishing you a strong and healthy recovery. live love laugh 9 hrs ago #66
A Coworker GAJMac 8 hrs ago #67
Mike, I'm sending you healing vibes and light! MLAA 8 hrs ago #68
Good friend had the TB treatment and is thriving years later Wild blueberry 8 hrs ago #69
I will add my best wishes for successful treatments Deuxcents 7 hrs ago #70
More positive vibes on the way.💫 Figarosmom 7 hrs ago #71
K&R spanone 7 hrs ago #72
All the best to you Mike mountain grammy 6 hrs ago #73
Oh I'm sorry for you róisín_dubh 4 hrs ago #75
Hang in there Mike C. OAITW r.2.0 4 hrs ago #76
Yikes, praying for your healing, Mike. summer_in_TX 4 hrs ago #77
Apologies, but I have no advice to offer. greatauntoftriplets 4 hrs ago #78
I began praying for you the moment I read your post - IndianaDave 3 hrs ago #79
Spendiing a lot of time ptaying these days Laurelin 3 hrs ago #80
Tons of our collective caring thoughts and hope for healing outcomes winging their way to you! My husband had bladder KitFox 2 hrs ago #81
Sending you prayers 🙏 and lots of positive healing vibes. 💞 nt Raine 1 hr ago #82

UpInArms

(55,119 posts)
1. Take care of yourself, Mike
Wed Apr 22, 2026, 02:17 PM
14 hrs ago

I am so sorry that you are going through all of this. I have no experience, so cannot offer any advice.

I will say that you are loved and my virtual arms are around you (((((hugs)))))

uia

senseandsensibility

(25,223 posts)
3. I'm sorry that I don't have anything more practical to offer
Wed Apr 22, 2026, 02:21 PM
14 hrs ago

but I am sending you good thoughts. Stay strong, my friend.

LoisB

(13,165 posts)
4. Sending healing prayers your way. I truly hope this treatment works and you
Wed Apr 22, 2026, 02:24 PM
14 hrs ago

are restored to good health.

PeaceWave

(3,649 posts)
5. It sounds like you've been diagnosed with either Stage 0 or 1 bladder cancer...
Wed Apr 22, 2026, 02:29 PM
14 hrs ago

The tuberculosis vaccine strain you're going to get is a form of immunotherapy. It's intended to stimulate an immune response to kill the cancer cells and prevent recurrence. Hopefully, it works as intended. Immunotherapy really is the gold standard today. It sounds like you're in good hands. Best of luck.

Lifeafter70

(1,136 posts)
31. I wasn't familiar with this treatment so did a little research
Wed Apr 22, 2026, 03:31 PM
13 hrs ago

I found the same as you. I was glad to see that it is used in early stage.
I do a lot of research for new treatments for different cancer due to my son's diagnosis of ACC cancer.

What I found for Mike C treatment was very positive.

Diamond_Dog

(40,792 posts)
6. It sounds a bit daunting, but medical science today is incredible.
Wed Apr 22, 2026, 02:30 PM
14 hrs ago

Please know everyone here at DU is rooting for your speedy and full recovery.

Maru Kitteh

(31,886 posts)
74. TB is good at encapsulating. I'm wondering if that
Wed Apr 22, 2026, 11:23 PM
5 hrs ago

is the function it serves. I’ll have to look it up tomorrow.

mwmisses4289

(4,463 posts)
12. 🫂 to you and your family.
Wed Apr 22, 2026, 02:37 PM
14 hrs ago

Y'all take care of yourselves, ya hear?
🫂 another hug for good measure.

1WorldHope

(2,099 posts)
16. That was a whole lot all at once.
Wed Apr 22, 2026, 02:49 PM
13 hrs ago

I'm betting it stopped you in your tracks.
All this seems like a good excuse to stop and smell the roses. Treat yourself well, squash negative thoughts when you hear yourself thinking them. Watch a lot of comedy and listen to music often. Life hands us these situations. How we react to them, I believe, is the most important part. Your friends here are pulling for you and are here if you need to talk or laugh or cry. Do it all at once if you like. You are precious! They really are doing some good stuff with cancer still. 💜🤟🏼🙏🏼

JMCKUSICK

(6,378 posts)
20. I'm really sorry to hear that Mike.
Wed Apr 22, 2026, 03:00 PM
13 hrs ago

Please know you have all of us behind you each step of the way. Our prayers, Vibes and thoughts will cushion your journey and most importantly, always be in your company whenever you need us!
God Speed!

OddMom20

(70 posts)
24. Sending you vibes for a good fight, Mike
Wed Apr 22, 2026, 03:05 PM
13 hrs ago

I wish I could send you advice to help you in this fight, but I’ve got nothing to offer there. Know that you’re being thought of and held close by many du-ers, and we will be here whenever you need us.

SheltieLover

(81,288 posts)
28. Healing vibes on the way to you
Wed Apr 22, 2026, 03:20 PM
13 hrs ago

Is this an experimental tx?

What is the prognosis?

Questions I would ask.

Take good care!

calimary

(90,382 posts)
29. Thank you for the update, Mike.
Wed Apr 22, 2026, 03:22 PM
13 hrs ago

When it’s possible, and easier for you, please do keep us posted. We’re gonna want to know how you’re doing. I’d guess everybody who reads this update is pulling for you and sending lots of good thoughts and healing vibes.

I always like to “think green.” Trees and gardens always feed the eyes AND the soul. However much you can surround yourself with beautiful green leafy and flowery growth, it’ll feed your spirit. It can be really invigorating! Give yourself the gift of beauty, renewal, and abundance every time you look around, outside. Enjoy every new sprout or planting or budding that you might see, anytime you take even a short walk outside. It’s Spring! This is the time of year when EVERYTHING is blooming and the bees are all busy working overtime out there. Sometimes it just seems like there’s magic everywhere! And, come on, don’t you deserve it?

Natural beauty can be a serious tonic for your mind.

livetohike

(24,341 posts)
30. Holding positive thoughts for you and your
Wed Apr 22, 2026, 03:23 PM
13 hrs ago

care team Mike C. Sending hugs as you navigate and win this challenge .

niyad

(133,200 posts)
32. My dear friend, sending vibes for your complete recovery and
Wed Apr 22, 2026, 03:41 PM
13 hrs ago

healing. Your DU family is here for you. Lean as hard as you need. As SKITTLES says, someone is always here.

Passages

(4,306 posts)
34. Dear Mike C, I'm not familiar with those treatments. I am here to wish you all the best
Wed Apr 22, 2026, 03:47 PM
12 hrs ago

for a rapid recovery, and may your journey be swift. I hope you have a good support system at home, too!



redwitch

(15,268 posts)
35. Healing prayers from upstate New York
Wed Apr 22, 2026, 03:52 PM
12 hrs ago

I hope the doctors plan B takes care of the bladder cancer fast!

barbtries

(31,323 posts)
36. I don't have any experience with this to offer you,
Wed Apr 22, 2026, 03:54 PM
12 hrs ago

but you do have my very best wishes for an effective treatment and great outcome!

radical noodle

(10,658 posts)
40. Not sure it was the same type of infusion
Wed Apr 22, 2026, 04:03 PM
12 hrs ago

but I know three people who had bladder cancer and had some sort of infusion. In all three cases, it worked well. Two are still living many years later, and one died of other causes just recently. I hope this helps ease your mind a bit.

Healing hugs to you.

KT2000

(22,180 posts)
41. One thing I learned
Wed Apr 22, 2026, 04:18 PM
12 hrs ago

going through some stuff - they know what they are doing!!
Just fasten your seatbelt and think forward.
Best to you!

TexLaProgressive

(12,758 posts)
46. It was different in my cases.
Wed Apr 22, 2026, 04:35 PM
12 hrs ago

First I had prostate cancer and it was removed 15 years ago. Then 2-3 years ago. I started passing blood in urine. I was diagnosed with bladder cancer and a TURBT determined it was muscle invasive. I underwent 3 rounds of dense dose MVAC chemo which shrunk the tumors to undetectable by a CT scan. Know it would recur we settled on a radical cyctectomy with ileal conduit. This means I have a urostomy..

That they are thinking of using BCG infusions you cancer is probably stage 1. Iirc the infusions will probably be self administered. Something else when urinating in the toilet it is highly recommended to sterilze it with chlorine bleech. The BCG can be dangerous to others.

Good luck to you on your treatment.

Silver Gaia

(5,379 posts)
47. I am happy to report that my husband had this treatment
Wed Apr 22, 2026, 04:45 PM
11 hrs ago

for bladder cancer and it was a success! As I recall, it wasn't any worse than regular chemo, but we did have to be careful that he not infect anyone in the family. He is many years out now, and just had a scan to check last week. Still cancer-free!

Good luck!

NNadir

(38,300 posts)
50. I'm sorry to hear this. If you PM me, I can send you a recent scientific review article on the topic.
Wed Apr 22, 2026, 05:08 PM
11 hrs ago

I personally know next to nothing about the topic and I am in no way a medical professional, but in this small way, perhaps I can be of service. The paper to which I refer is in the journal ACS Pharmacology Translational Science 2025 8, 2, 286-307 and is a review article entitled "A Comprehensive Review of Current Approaches in Bladder Cancer Treatment."

It may or may not be useful to you but I can share it.

I have not opened it and read it myself as of yet, but whenever a family member faces a health crisis this is how I approach it, checking out related scientific papers on the topic. I'm not a doctor but the process helps to demystify what we're being told.

Good luck.

WinstonSmith4740

(3,449 posts)
51. Hang in there, Mike.
Wed Apr 22, 2026, 05:08 PM
11 hrs ago

Even if we're not doing it here, medical science is progressing, and new discoveries are happening. I recently read an article about using bacteria to fight cancer cells, which sounds like it's in the same ballpark as using the mild form of TB.
You've got this. Just remember that it doesn't matter what the "cure" rate is of any given protocol, even if it's small. If you're in that small percentage, YOUR cure rate is 100%. Keep us in the loop...we've got you.
https://pmc.ncbi.nlm.nih.gov/articles/PMC11790194/

carpetbagger

(5,494 posts)
52. From my secondhand experience....
Wed Apr 22, 2026, 05:10 PM
11 hrs ago

Palliative care doctor here. It's actually a neat treatment, your body can't tell the BCG apart from the cancer, so it attacks the cancer as well.On average, it's a lot less bothersome than radiation, most of the effects can be described as general vaccination response (i.e. the flu-like symptoms after a covid or shingles shot) and "we messed with your bladder so it'll be angry for a little while" symptoms. They'll givr youna bunch of instructions that make it sound like you're a walking biohazard, it's pretty much theoretical-precautionary, I've never heard of anyone getting cross-infected from a treated patient.

Yonnie3

(19,531 posts)
53. I have had these TB infusions dozens of times over 20 years
Wed Apr 22, 2026, 05:13 PM
11 hrs ago

If you search BCG treatment you will find information like this https://my.clevelandclinic.org/health/treatments/17908-bacillus-calmette-guerin-bcg-treatment

Typically I would have a cystoscopy and if a tumor was spotted. I would then have a surgery via the urinary track and the cancer was removed. The pathologists would determine the stage and grade. What they find will likely determine the best treatment.

After a healing period I would then go to the urologist and BCG was inserted into my bladder via a catheter. I was asked to hold the BCG in my bladder for several hours. It was difficult to do sometimes. I was supposed to relieve myself only in a toilet and to add bleach to kill the BCG. Infusions were done weekly for six weeks.

After three months they took a another look inside my bladder. They saw more cancer and we started over with a surgery. The pathologists said it was a lower grade (aggressiveness) this time. After healing, I had and additional six weeks of the infusions and then had a cystoscopy (a look inside) in three months which was clean.

I then did a maintenance BGC regime where I had single infusions spaced at increasing intervals.

This has been going on since 1995 and I had several surgeries and courses of treatment. I still have annual looks in my bladder, but haven't needed a surgery since 2012 (I think) and haven't had BCG for roughly ten years.

There was no radiation as treatment for my cancer. I did let them try a chemo agent in my bladder immediately after a surgery, but my understanding is that trial was not successful and it was discontinued.

Please feel free to private message me with questions or concerns. I'll try to relate my experiences directly to you.



HeartsCanHope

(1,707 posts)
54. Don't know anything about the treatment, gopiscrap, but sending you healing vibes.
Wed Apr 22, 2026, 05:16 PM
11 hrs ago

Will be thinking of you and your family as you go through treatment and hoping for the very best.

Clouds Passing

(8,084 posts)
57. Sending you healing energies 💚 and comfort 🧡 Mike
Wed Apr 22, 2026, 06:10 PM
10 hrs ago

May your body respond well to treatments 🙏🏼

Timewas

(2,757 posts)
58. The TB infusion
Wed Apr 22, 2026, 06:26 PM
10 hrs ago

I have had bladder cancer for about 10 years now, the TB infusion is the first one, it is basically very easy and the main side effect is some tiredness, for me it was very minor.. I have had 3 different chemo infusions, just finished the thrid one a week ago.

They have a new device that they insert and it remains using the same as the TB infusion only quite a bit less it is a slow release system that remains in the bladder .

The "pretzel" (TAR-200) is a, flexible, pretzel-shaped device designed for slow, sustained release of the chemotherapy drug gemcitabine directly into the bladder to treat high-risk, non-muscle invasive bladder cancer (NMIBC). It offers a higher, more consistent drug concentration for weeks rather than hours, showing an 82-83.5% complete response rate in trials for BCG-unresponsive patients.

LetMyPeopleVote

(180,763 posts)
60. You will be in my prayers
Wed Apr 22, 2026, 06:33 PM
10 hrs ago

Take care of yourself and get well. It sounds like your doctors are on top of these conditions

Hey Joe

(709 posts)
63. Best wishes for you and yours
Wed Apr 22, 2026, 07:13 PM
9 hrs ago

Hope you are victorious in your battle and gain your health and strength back soon.
Good luck!

Bayard

(29,978 posts)
64. Sorry to hear this, Mike....
Wed Apr 22, 2026, 07:18 PM
9 hrs ago

But hoping for good results with your treatment. Please keep us posted. Lots of people care about you here.

GAJMac

(271 posts)
67. A Coworker
Wed Apr 22, 2026, 08:05 PM
8 hrs ago

I had a good friend/coworker who had this exact treatment. In his case, it was the first treatment tried, if I remember rightly. He responded VERY well to the treatment, and has now been cancer free for about two years.

This did, however, cause him to re-think his priorities, so he's now retired (miss that guy).

The worst part for him was sanitizing the bathroom after the treatment. The Doctor cautioned him to have his family members use a different bathroom if possible (it was), and to throughly clean and sanitize the bathroom before letting in his household use it. At least he only had to do that was for only the first couple of days after each treatment.

MLAA

(19,775 posts)
68. Mike, I'm sending you healing vibes and light!
Wed Apr 22, 2026, 08:22 PM
8 hrs ago

✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨🩷✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨

Wild blueberry

(8,336 posts)
69. Good friend had the TB treatment and is thriving years later
Wed Apr 22, 2026, 08:35 PM
8 hrs ago

Sending lots of forest energy from northern Wisconsin.
It's a lot to take in. Let yourself take in the beauty of our world and let yourself heal.
Hugs

Deuxcents

(27,343 posts)
70. I will add my best wishes for successful treatments
Wed Apr 22, 2026, 09:16 PM
7 hrs ago

Along with wishes from DUers from all over the country..good advice and the best news was the ones saying how far the advanced generation of medical technology has come for your health issue and its success rate for a healthy future. Keep us posted 🌺

Figarosmom

(12,568 posts)
71. More positive vibes on the way.💫
Wed Apr 22, 2026, 09:39 PM
7 hrs ago

From the others on this thread, sounds like you're in good hands that know what to do. You'll be fine and now is the time to relax and do things you like to do. Oh, and Mike, go outside and collect some of those healing negative ions. I'm a firm believer in the powers of Mother Nature.

mountain grammy

(29,101 posts)
73. All the best to you Mike
Wed Apr 22, 2026, 09:52 PM
6 hrs ago

Looks like you’ve got company here.

Love your posts. Get well soon and get back to us.

róisín_dubh

(12,371 posts)
75. Oh I'm sorry for you
Thu Apr 23, 2026, 12:12 AM
4 hrs ago

I can’t give you any advice, just good wishes. My partner has prostate cancer. He’ll have keyhole robotic surgery at some stage this summer.

summer_in_TX

(4,205 posts)
77. Yikes, praying for your healing, Mike.
Thu Apr 23, 2026, 12:19 AM
4 hrs ago

Comfort, peace, and strength as well.

There are some amazing new treatments.

greatauntoftriplets

(179,188 posts)
78. Apologies, but I have no advice to offer.
Thu Apr 23, 2026, 12:23 AM
4 hrs ago

Best of luck with any treatment that you decide to go with. My best wishes are with you.

IndianaDave

(660 posts)
79. I began praying for you the moment I read your post -
Thu Apr 23, 2026, 12:46 AM
3 hrs ago

and I will continue to pray for you, Mike. May you experience permanent healing and find inner peace.

Dave

Laurelin

(942 posts)
80. Spendiing a lot of time ptaying these days
Thu Apr 23, 2026, 01:16 AM
3 hrs ago

I'm not able to do much else while getting chemo. So I've got you covered with prayer and positive thoughts. I know nothing but it sounds like you have all sorts of hope. Stay strong!

KitFox

(587 posts)
81. Tons of our collective caring thoughts and hope for healing outcomes winging their way to you! My husband had bladder
Thu Apr 23, 2026, 02:36 AM
2 hrs ago

cancer. He had BCG treatment and it was successful, as he was cancer free for the rest of his life. He did have a couple of rare side affects from it: conjunctivitis (easily treated and lasted only a few days) and reactive arthritis which was managed well with Methotrexate. He originally had surgery to remove the small tumor, but after a year it grew back. He had surgery again to remove it and following that is when they scheduled him for the BCG treatments. That did the trick and I sincerely hope this will be successful for you, too. Get as much restorative rest as you can and know we are all pulling for you!

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