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JMCKUSICK

(3,659 posts)
Tue Aug 5, 2025, 06:35 PM Aug 5

I'm sorry that I have to keep asking you all for help,

September is fast approaching and so I am posting my GoFundMe link again and humbly asking for your donation or loan. (DUmail me please if you would like to discuss a loan.)

https://www.gofundme.com/f/help-john-mckusick-overcome-health-and-financial-struggles

Just as a reminder, I am in the midst of waiting for SSDI to wind its way through to determining me disabled, and that process is a torture of sorts that I've never before experienced. We as applicants don't seem to exist except on paper, as there is zero seeming concern as to the time it takes, God forbid any concern as to our conditions worsening unless it is a short term terminal diagnosis. In other words, if we expect you to die soon, we will expedite your application. However, if this is more chronic and worsening over extended time, your economic condition means noting and we will take our sweet time. (2 years at the end of this month and counting,) I have filled out and submitted paperwork to Senator Durbins' office to see if they can help expedite the process. I haven't heard back yet.
My expenses including rent, utilities, phone, internet etc... add up to about $1200 per month. I have made it a point not to ask for any donations once the following month has been taken care of as I am painfully aware of how much these requests suck to read and suck to write.
Updating you on my heart and back, my heart seems fine, I don't have any symptoms with my heart or lungs, my next appt. with my heart Dr. is at the end of this month. As for my back, it is as bad as it has been pain wise. I have just started PT again, which Medicaid is requiring for 6 weeks before they will approve a new MRI. I am having to lay down multiple times a day to relieve the pain that most activities only exacerbate.
While there isn't much positive within this post, please let me close with a healthy dose:
You have, with your generosity, allowed me to stay under this wonderful roof that is my home for eight months that I couldn't have otherwise have managed. You have allowed me to stay connected to you, to have a phone to use, and to keep reasonably warm this winter, and cool this summer. I have been able to cook meals, to keep milk cold, frozen food frozen, and canned food safe because of you.
You have, with your generosity, have allowed my clothes to stay clean, Petunia and Cuddles to stay fed and healthy, and most importantly to my mental health, given me a platform with which to be grateful, positive, and I dare say inspired every morning for sure, and other times of day as well.
You are my family, as the support you have shown in so many ways, has exceeded any that my blood family has offered in my entire lifetime.
Thank you, my wonderful DU family for all the support you continue to offer. That I am in such a decent spiritual place is due in no small part to you, an emotional rock, not just to me, but to so many.

Love, John

18 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
I'm sorry that I have to keep asking you all for help, (Original Post) JMCKUSICK Aug 5 OP
I know, right? OldBaldy1701E Aug 5 #1
You got that exactly right, OldBaldy! wordstroken Aug 5 #3
I'll tell you a sad story OldBaldy1701E, JMCKUSICK Aug 5 #5
I'm so so sorry for the pain you have endured because of your brother. wordstroken Aug 5 #7
On it! wordstroken Aug 5 #2
Thank you so much Wordstroken. JMCKUSICK Aug 5 #6
Beautiful and well meaning post. John debm55 Aug 5 #4
Thank you so much Debbie JMCKUSICK Aug 6 #8
Kick JMCKUSICK Aug 6 #9
Great day today, John. I hope your day is great. debm55 Aug 6 #10
kick debm55 Aug 7 #11
Kick JMCKUSICK Aug 8 #12
Your poems are so heartwarming. debm55 Aug 8 #13
Thank you Debbie! JMCKUSICK Aug 9 #14
You lift a lot of us too... Mike 03 Aug 9 #15
Agree. It is a delight reading John's morning posts. debm55 Aug 9 #16
Thank you Mike 03 JMCKUSICK Aug 9 #17
Almost there, debm55 Aug 10 #18

OldBaldy1701E

(8,762 posts)
1. I know, right?
Tue Aug 5, 2025, 06:43 PM
Aug 5

Isn't it wild when people who basically qualify as complete strangers are willing to help a person more than their own flesh and blood?

'Thicker than water' my ass.

wordstroken

(1,285 posts)
3. You got that exactly right, OldBaldy!
Tue Aug 5, 2025, 07:08 PM
Aug 5

Some of us — no matter how generous we are for years and years, and how much we support our “blood” family emotionally, physically, and financially — they are cruel and cold as ice (pun intended).

Thankfully, our loving DU family makes up for the pain many of us have felt in the past.

I am so blessed and proud to be among this wonderful substitute family.


🦋 wordstroken

JMCKUSICK

(3,659 posts)
5. I'll tell you a sad story OldBaldy1701E,
Tue Aug 5, 2025, 09:34 PM
Aug 5

In late 1999, I found my brother after almost 20 years apart. I cry telling this because we used to be very close when I lived with my father between foster homes and group homes. We met a couple of times and would talk about our differences as he was very rigidly religious and very strict as a parent and I was more rebellious and questioning of authority etc...
Into the summer of 2000, every time I would call him, he would answer with a hello and some version of "Hey, I was just thinking about you" all the while never receiving a single call initiated by him. Apparently, he was terrified that I was a bad influence on his kids and would lead them into temptation and rebellion.
Here we are 25 years later, and he still refuses to speak to me even though his kids are in their late 20's and early 30's.
To condemn a sibling to 25 years of familial purgatory if you will, after 20 years of separation reminds me that family is based on the foundation of love and if that isn't there, then there really isn't one, no matter a shared name or lineage.

wordstroken

(1,285 posts)
7. I'm so so sorry for the pain you have endured because of your brother.
Tue Aug 5, 2025, 10:12 PM
Aug 5

I hear you, and having been there, I know how emotionally excruciating it is.

Please know how much you are loved and cherished by so many here on DU. Our arms are open and we will help you get through this current challenge.
🥰

🦋 wordstroken

JMCKUSICK

(3,659 posts)
6. Thank you so much Wordstroken.
Tue Aug 5, 2025, 09:53 PM
Aug 5

Your generosity in deed and spirit is so uplifting to me every day. You are an inspiration that fills me with awe.
Thank you.

Mike 03

(18,683 posts)
15. You lift a lot of us too...
Sat Aug 9, 2025, 07:34 PM
Aug 9

I truly wish you the best. I was re-reading your posts on GoFundMe and they really hit hard today, as one of my sisters is about at the breaking point with her low back issues. She is contemplating lumbar fusion (multi-level, I think three discs but possibly more). So we are collecting all the info and experience we can so she can make the best decision. Back issues are so frustrating and I am just so sorry to see you or anyone else have to live with this, on top of the other challenges you are facing. Your ongoing courage, positive attitude, fearlessness really are an inspiration to me. I wish I had half your perseverance and mental toughness.

With every cell in my body I want you to prevail. In a sense, you are already triumphing because your spirit seems so strong. But I hope the rest gets settled and you get the assistance you deserve.

JMCKUSICK

(3,659 posts)
17. Thank you Mike 03
Sat Aug 9, 2025, 08:11 PM
Aug 9

I really appreciate the kind words of support you've offered.
As badly as my 4 back operations have gone, with my last being a second fusion (l2-l4), I can only recommend it as suffering without some surgical relief will only get worse.
I've dealt with chronic back pain since the summer of 1996 and while I wish there was a fix for me, I've resigned myself to the distinct possibility of having things be like this and worse going forward. The pain is really difficult and debilitating often but my state of mind has to stay positive or there really wouldn't be much reason to keep trying.
Please give your sister my best, and further, let her know if she wants, she can DU mail me anytime with questions or if she needs support.
Wish all my best wishes Mike 03,
John.

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