Cancer Support
Related: About this forumNeed information I can trust- wife is on 3rd round of chemo wants to try invermectin
I'll try to keep this post short.
My wife:
Diagnosed with 2 types of breast cancer and CLL in 2019 when she was 53.
Double mastectomy and chemo.
Something wrong with chemo port causing 5 infections resulting in sepsis and endocarditis that destroyed aortic valve, requiring valve replacement and then pacemaker defibrillator.
First recurrence of cancer, requiring radiation and chemo.
Replacement of first heart valve due to stenosis from radiation.
We are now in second recurrence of cancer and third round of chemo. This is supposed to be more targeted, but has caused her severe diarhhea, leading to multiple UTIs, and then pleural effusion requiring more hospitalizations.
At this point the blunt way of putting things is the oncologist is saying it is either chemo or cancer.
My wife is being steered to invermectin by her sweet but wing-nut aunt because she is being destroyed by the chemo and feels she has no life as leaving the house is difficult.
I don't know what to say to her. Is there any harm to trying it?

in2herbs
(3,839 posts)and most MJ stores are helpful.
LT Barclay
(3,047 posts)She was using medical marijuana, but we are in a state now where it is not available. We had hoped to have a better quality of life here, but she has trouble doing anything. I'm working on trying to find a good time for a trip to the coast so we can get there and she can rest before trying some light activities.
Lifeafter70
(582 posts)I was surprised to learn it is being used along with chemo in some trials for triple negative breast cancer. It is only in trials and not fda approved. It has shone promise in inhibiting cancer cell growth.
I would talk to her oncologist in regards to this and not take her aunts word that it works.
Cancer sucks my son has been fighting acc cancer since 2016. He just had his third recurrence and was told there are no treatments available. Unfortunately chemo has no effect on his type of cancer.
Sending positive vibes your way.
LT Barclay
(3,047 posts)follow any of the diet suggestions.
Lifeafter70
(582 posts)The best one we have come up with is to eat healthy lol. Protein, veggies and fruits. He trys to stay away from processed food and surgar. His cancer travels along his nerves, is microscopic and slow growing. That is why it is so difficult to treat. Many with acc survive 10 to 15 years after being diagnosed.
I would ask your wife's oncologist about those trials. Stay supportive for her but take her docs advice.
Skittles
(166,076 posts)but do NOT take medical advice from anyone but medical professionals
LT Barclay
(3,047 posts)PikaBlue
(361 posts)Do a quick Google search for "IP-6 and breast cancer". Then discuss with your wife's physician.
LT Barclay
(3,047 posts)Response to LT Barclay (Original post)
pbmus This message was self-deleted by its author.
LT Barclay
(3,047 posts)a cult status around it and as far and I can tell there are people who will claim it can cure damn near anything (I have one as a patient).
Lifeafter70
(582 posts)I did a quick search and found the clinical trials but couldn't post the link. So many are dealing with different types of cancer that do not respond to chemo or radiation and are desperate for treatment that promise to relieve their pain. Unfortunately many are just quacks looking to make a buck.
I want to thank you for the laugh in regards to your disclaimer.
Ivermectin is not currently considered safe or effective for cancer treatment
that and being pimped by rightwing hacks makes it suspect
Response to Skittles (Reply #15)
pbmus This message was self-deleted by its author.
Skittles
(166,076 posts)
Donman
(28 posts)Check for trials of immuneunotherapy. Check to see if blood coagulates properly. It's a shame that the port was such a problem. Do the best to maintain proper weight. If you can find a good homeopathic doctor, they can help with supplements. NO IVERMECTINE.
ATTITUDE is important and daily breathing and physical exercise if it is possible. Wishing you the best from the bottom of my heart. I've been close to this before. It's tough but try to keep to the sunnyside, as it's been said. AVOID SUGAR.
LT Barclay
(3,047 posts)related to the cancer not other causes. Now I'm trying to get in the game and keep her active and trying to help her control the lymphedema. I just bought her a new exercise machine, and an AC unit for the sunroom to give her exercise and more space in the house. If I had the money now, my goal is to recreate our yard like a mini botanical garden. I'm only about 100k short at the moment.
Irish_Dem
(72,427 posts)It is not about a $100K fancy garden.
It is about your devotion, love, support, time, active involvement in her health and treatment.
Connecting with her, spending quality time together. Helping her fight and heal if possible.
Asking questions for her, talking to medical providers, exploring options for her.
Small but important things like turning the sunroom into a healing and exercise spot for her.
She has descended into the severe illness nine circles of hell and needs as much help, support,
love that you can muster, and she needs to know you have her back and are in her corner.
LT Barclay
(3,047 posts)qualify for FMLA, it would be a real financial burden if they start docking my pay. Even though I have to work extra hours anyway, they will claim it is my fault for not completing documentation during the day, even though I have to see 2-3 patients at a time as a Physical Therapist and their EMR is crappy and slow.
The garden is to give her a peaceful place and I keep trying to find small things to make her smile and enjoy life. I do give her all the time I can.