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Nac Mac Feegle

(981 posts)
20. I have no intention of being condescending.
Thu Jul 28, 2016, 07:41 PM
Jul 2016

I understand that you have to pick your battles, but you can pick your victories.

I almost coded 3 times in the period of a month before my problem got diagnosed and treated.

Sometimes your victories are "Got out of bed by myself." "Didn't choke on broth." "Made it to the bathroom with only a cane." or "Was able to talk on the phone for 5 minutes with the other person being able to understand me."

It's easy to give up, anyone can do it. I know that seems trite, but it's also true.

Fight for every second, every minute. Avenge yourself by being a pain in the ass to some deserving people, if nothing else.

Find something to be passionate about and fight for it, however you can.

Refuse to "give up", but feel free to "take a rest".

If I am going to be killed by a bear, I will jam my arm down its' throat and choke it to death, that I may have a suitable mount in the afterlife. I'm takin' that motherf**ker with me.


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Do not go gentle into that good night.
Rage, rage against the dying of the light.
-Dylan Thomas

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And never, never, NEVER give up your sense of humor. The more sick and twisted the better.



The fates DESERVE an extended middle finger in return for their "tender mercies".

Recommendations

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I really am sorry for you and your kids. RGinNJ Apr 2015 #1
Thanks RG. DeadLetterOffice Apr 2015 #2
I just read up about it. dixiegrrrrl Apr 2015 #3
We've got the hypermobility subtype. DeadLetterOffice Apr 2015 #4
I had never heard of that until recently when I learned.. 2theleft Apr 2015 #5
I hope the best for you and your kids... Holly_Hobby May 2015 #6
I saw a genetic counselor to diagnose. DeadLetterOffice May 2015 #7
Ok, that makes sense... Holly_Hobby May 2015 #8
Good luck! DeadLetterOffice May 2015 #9
They say a geneticist is the best person to diagnose. I actually did a lot of research on my own Seeinghope Jun 2016 #15
I have not heard of this but I am glad you got a diagnosis. DawgHouse Jun 2015 #10
It really is. DeadLetterOffice Jun 2015 #11
So sorry, DeadLetterOffice. pnwmom Aug 2015 #12
Try not to do the guilt trip DeadLetterOffice Aug 2015 #13
Thanks, DLO pnwmom Aug 2015 #14
I am glad that you finally got a diagnosis. For me it connected all of the dots. Seeinghope Jun 2016 #16
Connected all my dots, too! DeadLetterOffice Jul 2016 #19
The daughter of a friend of mine has one of the variants of this Nac Mac Feegle Jul 2016 #17
I'm sure you mean well. DeadLetterOffice Jul 2016 #18
I have no intention of being condescending. Nac Mac Feegle Jul 2016 #20
Amen. DeadLetterOffice Aug 2016 #24
my daughter's pcp thinks she has this. mopinko Aug 2016 #21
just got dx'd myself Paula Sims Aug 2016 #22
Hypermobile (type 3) DeadLetterOffice Aug 2016 #23
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