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Backseat Driver

(4,671 posts)
7. Yes - long story; w/DH's dad - very different diseases
Fri Apr 7, 2023, 03:33 AM
Apr 2023

It's great as a patient to have a good attitude and easier if the patient understands how the body works; it's far different than being unrealistically and subbornly convinced one will regain independent living at home, but he aced physical therapy and occupational therapy checklists, and suffice it to say, he beat sepsis complications twice and later, an e. coli heart infection and pneumonia complications after surgery for Stage 4 bladder cancer at the beginning of this saga and kidney failure at the end of it. His bed was in our dining room for many months. When he could no longer pay for assisted living, he returned to our home on oxygen and the bed was switched out to the family room so he could use the half-bath for functions, urostomy bag changes, and bathing--Then his kidneys quit; 3 x a week dialysis runs. His electrolytes were often out of whack, so he sometimes didn't think right or became unconscious. He was also deaf with hearing aids he would not wear. He outlived his funds and ours. He didn't qualify for VA assistance (Navy WWII). We were thankful for Medicare's Kidney disease coverage. DH, an only child, never qualified for Family Leave; but that was unpaid anyhow then as now, so...I'm hoping your relationship is loving and you can figure out a good communication system before things get evermore challenging. Do take care of yourself. Like I said, someone's always here!

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