Idiopathic Pulmonary Fibrosis [View all]

Do any members have idiopathic pulmonary fibrosis or have any family members with it? I was just diagnosed with it because of incidental CT scan. I am not having problems with oxygen levels yet. My brother died because it about 5 years ago and it is genetic related in about 30% of cases. The average life span after diagnosis is 3-5 years. My brother lived 3 years. It is an ugly disease that robs you of keeping your oxygen level at a level that allows you to do anything. I think mine is an early case that will allow me to live longer than the usual case.